(Endometriosis Special Interest Group)
We are frequently asked questions about endometriosis, mainly through our Facebook page. Endometriosis NZ is very fortunate to have access to some of the most experienced advanced laparoscopic surgeons and pelvic pain specialists.
To find out who our ESIG specialists are click here.
Our ESIG members are donating their time to answer the questions posed to them by Endometriosis NZ.
Mirena or Jaydess
I am 20 year old, have a diagnosis of endometriosis and have not had children. My gynaecologist has suggested a Jaydess be placed at my next laparoscopy. Why a Jaydess and not a Mirena? I am confused. I have not had one of these before. Please ASK ESIG for me. Thanks.Read more →
Exercising without triggering pain and symptoms
Can you exercise without provoking or triggering more pain and symptoms?
Thank you to Cate Grace (Christchurch) and Leanne Wait (Hawkes Bay) for your responses.Read more →
Sciatica and Endometriosis
"Lately, I've been wondering about whether my sciatica could be related to my endometriosis. I first developed sciatic pain 3 years ago and it was initially triggered by intercourse and I went to the ER at the time only to be referred onto a spinal specialist. At the time I could barely walk because the pain in my right hip was so bad and radiated all the way down to my foot. 7 months ago I had my laparoscopy to diagnose stage 3 endo and lately have been wondering if my sciatica could be related. Could it be extra pelvic endo? What is the best course of action to find out more?"
Thankyou to Heba Shaheed (Sydney, Australia) for your response.Read more →
Advice for dietary choices.
"It can be hard to balance diet between multiple health conditions. Any advice on how to balance healthy food choices so that the food intake doesn’t seem really restricted? I’d love some advice on how to eat with IC (interstitial cystitis), as I and others I know do struggle with it"
"I struggle with the concept of everyone panicking that they have to completely cut out lots of food groups (as is advertised in the so-called Endo diet), so I would like some more info on what is important with Endo and what we should be focusing on dietary wise. Does everyone with Endometriosis need to eliminate things from their diet, or do some people not have symptom improvement through diet?"
Thank you to Clarice Hebblewaithe (Christchurch) and Courtney Hibberd (Auckland) for your responses.Read more →
Unresolved symptoms after surgery and Mirena
Here is the ASK ESIG question (summarised): Miss M (25yrs) Symptom onset in 2011 – 2016 - abnormal discharge, irregular bleeding, pelvic pain worsening symptoms over 5 years. Mirena placed. In Jan 2016 laparoscopy confirmed endo – ‘widespread but superficial’. Mirena left in place. Continues to experience discharge + bleeding. Pelvic pain improved. 10 days a month symptom free. I need some advice! Is there anything that will help my irregularities and should I also have the Mirena removed.Read more →
Advice for adolescents with period pain and other symptoms
The September ASK ESIG question is from a concerned Mother for her teenage daughter. Thank you to Dr Susan Evans (Adelaide), Dr Simon Edmonds (Auckland), and the ENZ Facebook members for your responses.
'I’m the mother of 16 year old Abby and I am desperate to know what to do about Abby’s bad periods. Abby has at least 2 days off school every month and is now having pains at other times. Her periods started at 12 and they have always been bad. I have a diagnosis of endometriosis which was a real battle to have treated and I still suffer. But to see my daughter now heading down the same path, is so upsetting.'Read more →