(Endometriosis Special Interest Group)
We are frequently asked questions about endometriosis, mainly through our Facebook page. Endometriosis NZ is very fortunate to have access to some of the most experienced advanced laparoscopic surgeons and pelvic pain specialists.
To find out who our ESIG specialists are click here.
Our ESIG members are donating their time to answer the questions posed to them by Endometriosis NZ.
Advice for dietary choices.
"It can be hard to balance diet between multiple health conditions. Any advice on how to balance healthy food choices so that the food intake doesn’t seem really restricted? I’d love some advice on how to eat with IC (interstitial cystitis), as I and others I know do struggle with it"
"I struggle with the concept of everyone panicking that they have to completely cut out lots of food groups (as is advertised in the so-called Endo diet), so I would like some more info on what is important with Endo and what we should be focusing on dietary wise. Does everyone with Endometriosis need to eliminate things from their diet, or do some people not have symptom improvement through diet?"
Thank you to Clarice Hebblewaithe (Christchurch) and Courtney Hibberd (Auckland) for your responses.Read more →
Unresolved symptoms after surgery and Mirena
Here is the ASK ESIG question (summarised): Miss M (25yrs) Symptom onset in 2011 – 2016 - abnormal discharge, irregular bleeding, pelvic pain worsening symptoms over 5 years. Mirena placed. In Jan 2016 laparoscopy confirmed endo – ‘widespread but superficial’. Mirena left in place. Continues to experience discharge + bleeding. Pelvic pain improved. 10 days a month symptom free. I need some advice! Is there anything that will help my irregularities and should I also have the Mirena removed.Read more →
Advice for adolescents with period pain and other symptoms
The September ASK ESIG question is from a concerned Mother for her teenage daughter. Thank you to Dr Susan Evans (Adelaide), Dr Simon Edmonds (Auckland), and the ENZ Facebook members for your responses.
'I’m the mother of 16 year old Abby and I am desperate to know what to do about Abby’s bad periods. Abby has at least 2 days off school every month and is now having pains at other times. Her periods started at 12 and they have always been bad. I have a diagnosis of endometriosis which was a real battle to have treated and I still suffer. But to see my daughter now heading down the same path, is so upsetting.'Read more →
Return of symptoms and repeat surgery
When do symptoms and failure of medical therapies to ease symptoms indicate that surgery could be required?
Here are the ASK ESIG responses to this question about repeat surgery. Thank you to Dr VP Singh (Hamilton), Dr Keith Harrison (Hawkes Bay), Professor Neil Johnson (Auckland), and Hannah Blakely, Clinical Psychologist (Christchurch), for your responses.Read more →
How a Clinical Psychologist can help
"It can be so challenging trying to manage the fluctuating emotions that endo brings. I can feel fine one day and then the next I wake up feeling anxious or melancholic. What advice or suggestions can you give on how to manage these fluctuating emotions?"
"What are some good ways to support people I know with Endo who also have depression or anxiety (or both) as a consequence of their health issues?"
Clinical Psychologists Leena St Martin and Hannah Blakely respond to the above ASK ESIG questions.Read more →
How Pelvic Physiotherapy can help
“How does pelvic floor physiotherapy actually help in women with Endometriosis, and what are the mechanics behind some of the muscular causes of pelvic pain that physios treat?”Read more →
This is a great question because the role of the muscles and pelvic health physio (who provide pelvic floor physiotherapy) is often poorly acknowledged. Women with endometriosis experience pain for many reasons and the reasons and science behind how this all fits together is complex and can be confusing. So let’s take a closer look at some of the mechanisms of pain that physiotherapy can help with.